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Tuesday, March 28, 2006

Chase is Enjoying Spring Break

Hi Everybody,

Carol here standing in for John who is celebrating Spring Break with the kids in Orlando, Florida. I got to stay home to have a well-needed "mommy break" and collect myself for a very important trip to Medjugorje next month. We leave the 17th of April and come back the 24th for what we expect to be a monumental, pivotal spiritual experience. From all we've read and seen on video, we are amazed at how special this place is. We wish we could bring everyone with us to share in this amazing experience. You all have been so instrumental and important to us during this challenge - we know that even if you aren't there in person, you will be in spirit and prayer. We are so fortunate to have all your support. Words cannot express the gratitude we feel. Once we finalize the specific times of our climb up the hill of apparitions, we will let everyone know when to start the devout prayer so that our miracle can come to fruition.

Over the past few days, Chase and Barbara have been having the time of their lives with Daddy at all the major theme parks in Orlando. Give Kids the World has made all the arrangements above and beyond expectations to ensure that Chase feels like a King. He has fufilled that role happily to the dismay of his sister. She resents being his subject but is happy to profit from his entitlements. GKTW has prepared organic meals for every breakfast and supper as well as free passes to every theme park plus a special button entitles them to be first in line for as many rides they like. It has been an incredible experience for them thanks to the endless energy and effort of their loving dad, John.

Chase has managed to exert tremendous energy during this trip and his appetite has been excellent. This is a great sign considering he was eating very little before he left for the trip due to a flu virus. He made a great rebound and his blood tests have come out quite balanced. He is in great spirits and there is little more we can ask for considering all he's going through. We are so proud of our little trooper as he shows amazing courage and patience through this trying time. Barbara too has demonstrated the utmost patience, love and kindness towards her brother as she often takes the back seat to him and handle his resentment about the fact that she doesn’t have to go through what he deals with. We know these two will be able to endure anything after this test and we just wanted all of you to know how much your prayers are helping us to handle this very difficult challenge.

Peace and love to all of you and may God Bless all the people you love!!

Sincerely,

The Sammuts

Tuesday, March 14, 2006

Chase is Going in for Another Transfusion

Although Chase has been doing fairly well overall for the past week, in terms of cooperating and tolerating the increased doses of his ANP treatments, it’s clearly taking a toll on his systems. His hemoglobin level has been trending down with a corresponding impact on his level of energy and appetite. This has been difficult to watch, because we know how much this affected him in November and December – we certainly don’t intend to let it get that low this time. Especially since we have an upcoming trip to Disney next week, through “Give Kids the World” – the organization that sponsors children with life threatening illnesses to all the Disney themeparks with special buttons and passes that allow them to get on any ride or activity without waiting in lines. We’re all looking forward to this “treat” and we want to make sure Chase’s energy level is up for the trip.

When we got the results of his bloodtest yesterday, we immediately decided to take him back in for a transfusion as quickly as possible so that his body has a chance to adjust in time for the trip. This time, we’re expecting to be able to use the blood donated by Carol’s cousin, Amy Weinkoff, who is a match (thanks Amy!). If all goes according to plan, he’ll be back on track tomorrow afternoon and gearing up for Spring Break. It’s been over two months since the last time Chase had to do a transfusion and it seemed to work quite well – hopefully this will be the case again and this “boost” will carry him through the much longer trip to Medjigoria. We recently watched a documentary about the miracles that have been taking place there and we are all extremely excited about the trip in April.

Thanks for all the prayers and support! We truly appreciate it!

Love,

John & Carol Sammut
Chase & Barbara Ann

Sunday, March 05, 2006

Chase is "Managing" the Increased Doses

Well, over the past two weeks we've been working Chase up the curve on all of his dosages of the various treatments he's on. For the most part, he's been managing to tolerate this, although he has had a few bouts of nausea. We're a bit anxious and cautious about this whole approach, because it took a long time to achieve stability and we remember all too vividly how horrible it was in the interim when nausea or lack of appetite was a daily challenge.

So far, this time around has been much better, but we're taking it very slowly. Chase seems to understand what we're trying to do - find a way to get him completely back to divine health so that he can stop the treatments altogether, but that it's taking longer than anyone would like. He's already acknowledging that this journey might not be over by his 6th B-day in May, when he's hoping to go to the Bahamas to celebrate. We're not giving up on this miracle target, but he realizes that he might still be on treatments when we return.

This past week, we had a real catharsis. We met with a rife practitioner who had a much more elaborate machine than we're using. The best part about the meeting was that she concurred with everything we're doing thus far and from her scans, she found that other than this "imbalance" in the brainstem, everything else in Chase's system seems to be doing quite well. She was very impressed with his outlook and awareness - her hunch is that he may be an indigo child, but that's something for us to explore down the road.

The main thing we wanted to accomplish through the visit was to determine through the scan if Chase's body is keenly aware of this condition so that it can fight it off with all the supplements we're giving him. The concern was that if his body is relying upon our external rife therapy and other things, it might not be taking on the battle directly. To our relief, this is not the case. We were quite amazed at the sophistication of this new machine. Apparently through scanning the frequencies of the elements in this system, it was able to indicate that the root cause of the lesion was residual toxins from his measles, mumps, rubella vaccination. This wasn't the entire cause, but perhaps a catelist along with other things that combined to create this condition. This wasn't that surprising to us as we suspected something to do with vaccinations (this has been linked to many other pediatric conditions was well).

Through this scan, we were also able to determine the frequency we should use our rife machine as well as fine tuned our homeopathic remedy. We were very encouraged by the visit and have a renewed confidence in the path that Chase is on. This practitioner has had extensive experience (including having cured herself of two types of cancer through completely natural means) and she firmly believes we're on the right track with our combined protocol.

We also had a nice service at church today and met once again with the nun who is planning our trip to Medjugorje. We're very excited about the plans and the next steps in the unfolding of this miracle for our whole family. Thanks for all the prayers and support. We're definitely feeling the power of our prayer circle - Chase is doing extremely well, despite the challenges. Although Barbara has been struggling a bit lately, we're trying to focus more quality time and attention on her to get her back on track as well. We would appreciate your inclusion of her in the ongoing prayers.

Love,

John & Carol
Chase & Barbara Ann