Chase Hit Another Minor Speedbump
Well, first for the good news – Chase had nearly 3 weeks straight of all around stability – the longest stretch since the start of this ordeal. His energy has been up and he had a blast swimming and playing basketball over the weekend. He definitely doesn’t have the strength that he did last year (couldn’t get the ball to the basket this time), but it didn’t seem to bother him that much. He’s just enjoying getting out there and mixing it up. Chase swam like a champ with the advanced group in the camp and he seems to have gotten over his apprehension of the deep end again.
Unfortunately, his luck ran out by Tuesday of this week. We had difficulty with the IV tubes leaking over the weekend and that seemed to set the stage. Carol ended up spending 4 hours with Chase in the emergency room from 1-5 am trying to get someone to correctly change his port access and that just ran them both down on energy. Then Chase ended up with nausea again with a fever for a couple of days and had to stop all treatments and miss school. This created an even greater burden for Carol to wait on him hand and foot through this period. When we got the results of his bloodwork, we could see why he didn’t want to tolerate treatment or eat much – his potassium was the lowest it’s ever been and his sodium was off the chart (probably due to dehydration related to the fever). Chase seems to be coming around again today and hopefully he’ll get back to normal by tomorrow so he can resume the antineoplaston treatments. His next MRI has been confirmed for February 16th – we’re really looking forward to it because we expect to be able to report more progress this time around.
Thanks for all the prayers and support! We truly appreciate it!
Love,
John & Carol Sammut
Chase & Barbara Ann
Unfortunately, his luck ran out by Tuesday of this week. We had difficulty with the IV tubes leaking over the weekend and that seemed to set the stage. Carol ended up spending 4 hours with Chase in the emergency room from 1-5 am trying to get someone to correctly change his port access and that just ran them both down on energy. Then Chase ended up with nausea again with a fever for a couple of days and had to stop all treatments and miss school. This created an even greater burden for Carol to wait on him hand and foot through this period. When we got the results of his bloodwork, we could see why he didn’t want to tolerate treatment or eat much – his potassium was the lowest it’s ever been and his sodium was off the chart (probably due to dehydration related to the fever). Chase seems to be coming around again today and hopefully he’ll get back to normal by tomorrow so he can resume the antineoplaston treatments. His next MRI has been confirmed for February 16th – we’re really looking forward to it because we expect to be able to report more progress this time around.
Thanks for all the prayers and support! We truly appreciate it!
Love,
John & Carol Sammut
Chase & Barbara Ann
posted by John & Carol Sammut at 5:12 AM
1 Comments:
Tell Chase that when Tony Tondelli was on antineoplaston treatment, he couldn't hit a jumper from outside the arc either, so he went in for layups instead. Never stopped playing during treatment. About 6 months after completing treatment, he was "comeback player of the year" with his YMCA team. Now he doesn't play anymore because his knees and back don't hold up--a result of middle age, not brain tumor. Best wishes, Terry Tondelli, wife of Tony, 11 yr. GBM survivor.
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