Thanks for the Wonderful Prayer Service
The prayers service last night was absolutely wonderful. We had an excellent turnout and Carol’s high school friends, Kathy, Dawn and Laurie had a beautiful program all worked out that filled our spirits to the brim. We’re more excited than ever to see this miracle unfold before our eyes and we thank everyone that attended or were with us in spirit. We could certainly feel the power of the prayers (note: if I can figure out how to upload the file from the service, I'll post it to Chase's blog soon).
Chase had his best night since the beginning of the treatments. He only woke up twice, as opposed to 5-8 times per night. The catheter worked fairly well, although there are still some improvements to be made. We explained the importance of this to him again and our need for him to be patient in the process while we figure out the best system that will allow him (and the rest of us) to get good sleep. He seemed to understand and agreed to continue to work with us. After the improved sleep, he woke up in great spirits again and drank another vitamin packed smoothie before heading to school.
We also learned some interesting info about our house over the weekend. We had a dowser come over to assess geopathic disturbances in the area and sure enough she found that three different current fields intersect right in Chase’s room (all of which was assessed from outside our house, before she knew the layout or where Chase’s room was). She’s in the process of researching this some more and developing recommendations that could enable us to diffuse the sources of electro-magnetic radiation / disturbances. In the meantime, Chase is shacking up in our room, which actually makes it much easier to monitor him through the night.
Of course, this was a difficult pill for Barbara to swallow – she’s been watching as the level of attention to Chase continues to mount and this one put her over the top. She broke down and cried about it (believing that he’s the “favored one”), until we explained the extent of the problem in his room and that the only other option was to put him in her room. At that point, she got it and preferred to keep her room to herself. Fortunately, she got over it quickly with the help of some extra love and attention from mom.
Overall, we couldn’t be more pleased with Chase’s progress. As of today, he’s at the maximum of the target dose range the Burzynski Clinic had recommended (350 / 35 ml per dose) and he’s tolerated it all with no real problems. He’s been a bit more lethargic than usual in the afternoons, but that’s to be expected. The clinic recommended that we continue to find ways to keep him moving so the medicine doesn’t get him sedentary and bog him down. We’re excited about the next step in his integration at school, which will be participating in Physical Education (just before lunch). If we can get that worked out and set up the timing of his treatments properly, he can be disconnected for the half hour class and we’ll be ensured that gets at least that much regular exercise each day. We’re hoping to have that in place by the end of the week and with the support of all your prayers, we’re sure that’ll be the case. Thanks again!!
Lots of love and gratitude,
John & Carol Sammut
Chase and Barbara Ann
Chase had his best night since the beginning of the treatments. He only woke up twice, as opposed to 5-8 times per night. The catheter worked fairly well, although there are still some improvements to be made. We explained the importance of this to him again and our need for him to be patient in the process while we figure out the best system that will allow him (and the rest of us) to get good sleep. He seemed to understand and agreed to continue to work with us. After the improved sleep, he woke up in great spirits again and drank another vitamin packed smoothie before heading to school.
We also learned some interesting info about our house over the weekend. We had a dowser come over to assess geopathic disturbances in the area and sure enough she found that three different current fields intersect right in Chase’s room (all of which was assessed from outside our house, before she knew the layout or where Chase’s room was). She’s in the process of researching this some more and developing recommendations that could enable us to diffuse the sources of electro-magnetic radiation / disturbances. In the meantime, Chase is shacking up in our room, which actually makes it much easier to monitor him through the night.
Of course, this was a difficult pill for Barbara to swallow – she’s been watching as the level of attention to Chase continues to mount and this one put her over the top. She broke down and cried about it (believing that he’s the “favored one”), until we explained the extent of the problem in his room and that the only other option was to put him in her room. At that point, she got it and preferred to keep her room to herself. Fortunately, she got over it quickly with the help of some extra love and attention from mom.
Overall, we couldn’t be more pleased with Chase’s progress. As of today, he’s at the maximum of the target dose range the Burzynski Clinic had recommended (350 / 35 ml per dose) and he’s tolerated it all with no real problems. He’s been a bit more lethargic than usual in the afternoons, but that’s to be expected. The clinic recommended that we continue to find ways to keep him moving so the medicine doesn’t get him sedentary and bog him down. We’re excited about the next step in his integration at school, which will be participating in Physical Education (just before lunch). If we can get that worked out and set up the timing of his treatments properly, he can be disconnected for the half hour class and we’ll be ensured that gets at least that much regular exercise each day. We’re hoping to have that in place by the end of the week and with the support of all your prayers, we’re sure that’ll be the case. Thanks again!!
Lots of love and gratitude,
John & Carol Sammut
Chase and Barbara Ann
posted by John & Carol Sammut at 6:46 AM
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