The follow-up interview and investigation from our encounter with Social Services is going to be broadcasted on the local Channel 4 news at 11 pm on Monday night (Nov 13th). Apparently, after the first coverage, they got a lot of inquiries (mostly outraged citizens), so they conducted an investigation and another interview with us. We’re looking forward to the additional coverage, since they did a great job last time which resulted in even more support and Prayer Warriors for Chase.
After it’s aired, we’ll try to get a link from their archive and forward it for those who aren’t local; however, the last time their link was only active for a day or so. We invite all those who feel as strongly as we did about the misuse of taxpayer funds and Circuit Court resources to voice your concerns. While we’re not seeking retribution in any way (there is no counter suit on our behalf), and we’re not trying to be vindictive, we just want to prevent this kind of injustice from happening to other parents who pursue alternative therapies, particularly in cases where conventional medicine doesn’t have a cure. We realize that there are appropriate situations for Social Services to be brought in; however, they should be required to conduct a reasonable amount of investigation and diligence before being given a court order to take custody of children (especially when a child’s condition is fragile).
On a bright note, Chase is continuing to do great – Praise the Lord. He’s now had 5 days straight of breathing on his own (with pressure support from the vent). His vitals remain extremely stable and we’re slowly backing off the amount of pressure support required. As he continues to improve and gain strength, he’ll eventually be completely off the vent – God willing. We also had a good initial session using a brain-computer-interface to map his brainwaves and we’re encouraged that it could help with stimulating improvements in his motor skills as well as responsiveness. Any ability to communicate consistently would make a huge difference in lifting our spirits, as well as Chase’s. The best news was that the Neurofeedback practitioner was able to detect fairly normal brainwave activity on a portion of Chase’s head – another confirmation that the assessment done at the hospital was invalid (as we strongly suspected), or at least incorrectly interpreted.
Thanks again to all the Prayer Warriors for remaining vigilant with us in this battle. We’re keeping the faith and believing that our miracle is continuing to unfold in Divine Order.
God Bless!
John & Carol
Chase & Barbara Ann
I will pray for Chase , but I also wish to introduce you to Dr. Burzynski who has a clinic in Texas for others with this affliction. Wonderful results from his treatments are on the website :
ReplyDeletewww.burzynskipatientgroup.org or;
cancermed.com
This is a real person who has cured many with this condition.
God Bless you all.